Improving our health by translating research evidence into local NHS practice
patient & public involvement (PpI) In CLAHRC-BBC
Examples of PPI in our nine themes
Here are some examples from our nine
themes of where PPI has been developed:
• Our paediatric
theme (2) has successfully engaged with Medicines for
Children user-group to gain their input on research protocols and
patient information documents.
• The ‘YOUTHspace’ intervention linked to the work of our psychosis
theme (3) has been developed through ‘Youth Board’ meetings. The service
users have been instrumental in the planning, feedback and development
of educational approaches to increase awareness, reduce the stigma of
mental health and develop interventions in schools. Volunteers have
formed a specialist media
group to develop film media and to
support the partnership website (Youthspace.me). The service users involved in
this theme drive the priorities and will be leading in the dissemination
of findings and initiatives through the social media that they have been
developing.
• Our prevention of cardiovascular disease
theme (6) are currently in
the process of accessing members of the Sikh community via community
organisations and places of worship to participate in research with
regards to the development of health services for multi-ethnic
communities prone to and suffering from chronic illnesses. The research
is ongoing, however it is envisaged that this research will help to
inform strategy when designing self management intervention for
multi-ethnic communities in the future.
• PPI representatives working with our stroke and TIA
theme (7) have
been heavily involved in ensuring that patient information leaflets are
easy to understand. They have also helped develop a topic guide for
interviews with patients. A young stroke survivor has joined the
Theme Management Group and is keen to become involved in other CLAHRC-BBC
PPI activities. She is in the process of setting up a local Stroke Support
Group and it is hoped that academics in Theme 7 can help to facilitate
her work through presentations to the group.
• Our patient safety
theme (9) continues to work with a Trust volunteer,
who is currently undertaking a review of the relevant national
organisations related to patient safety in order to showcase work and
invite involvement in the discussion about research findings.
